For most people food is a source of enjoyment and social activity. But for the parent of an allergic child, it can be a source of stress, especially if the reaction is severe or life-threatening and if the allergen is a common ingredient.
My son was diagnosed with a food allergy two years ago making him more likely to develop a life-threatening reaction. While we did not have to carry an epi-pen for him, the growing sensitivity was putting us on that trajectory. For the first year after his diagnosis, I was on high alert, particularly after he reacted from being kissed by someone who had eaten the allergen. His allergist restricted my son from eggs, palm oils, nuts, coconut, chocolate, and fish in any food item or anything that would touch his skin as well as anything processed on shared equipment. We also learned all of the other names for the allergens and their derivatives. At the time, my son was still breastfeeding, so I also avoided the allergens in order to prevent exposure to the proteins.
The allergens seemed to be everywhere. So many foods, lotions, and soaps had one or more of the allergens listed on the ingredient labels. Even my face serum had an egg protein in it. I shopping for a package of baby spinach until I read that it had been processed on shared equipment. Grocery shopping became time-consuming. Going out to restaurants, eating at school, and eating with friends became complicated, but possible with education and often packing our own food.
Some scoffed at how we approached my son’s allergy-until they witnessed a reaction. Others were sensitive to it from the beginning.
Not all parents take the same approach. Two friends began the same journey two years earlier than we did when their daughters were diagnosed with nut allergies. They were both a source of comfort and education. Their children outgrew their allergies. Another acquaintance had also been on the journey but took a much more relaxed approach. Her child was often in the emergency room, carried an epi-pen at all times, and seemed to frequently suffer from a reaction.
A year into this, a new study indicated we might be able to build tolerance to eggs. And so began a series of introductions. Over the last year, after careful consultation with my son’s allergist and series of tests, my son has built his tolerance to baked items with eggs and has gone so far as to have bites of scrambled eggs. He has been able to successfully eat chocolate (yay!), palm oil and items with traces of coconut. This month, before the school year starts, my goal is to gradually introduce nuts.
I recognize that until you see your child’s face swell up after eating what seems to be a harmless food, it doesn’t seem like a big deal. And until you read every label of every item every time it is brought into your house, it may not seem challenging.
Peanut butter and jelly sandwiches are supposed to be the staple of the American child’s diet- not a potential threat. When I see other mothers give their child a peanut butter sandwich without a care in the world, I am envious. If my child is closeby, I am cautious. Now as we begin to introduce nuts, I am hopeful. Wish us luck!
Tessa Lemos is a Chicana who grew up and was educated in the Pacific Northwest, blossomed in New York City, and now lives in Nashville where she continues to learn and grow. She is a lawyer by training, administrator by profession, and organizer by habit. She spends her days with her children and her nights with her husband and squeezes in the words as much as possible.
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You’re so brave! I don’t have an allergic child, but I WAS an allergic child. My condition was never life-threatening, but it was life-changing. My favorite lunch in the world was a peanut butter and jelly sandwich and chocolate milk. Naturally, the first things I had to give up were . . . milk, chocolate, and nuts! I remember how hard that was, and what bliss it was to taste those things again, years later. I still savor them! I wish you well with this process. I know that any risk with one’s children is the most frightening risk of all. Good luck!
Carolyn, I am so glad you are able to eat safely again!
Tessa, my son had multiple food allergies seemingly from the time he was born, so I sure understand how significantly it impacts his life, your life, and even the lives of your family and friends, school mates, etc. Although my son didn’t have anaphalactic responses, he did have terrible hives a lot, to the point that we had trouble finding babysitters who were comfortable keeping him!
What I learned during that period of time is how much you do have to take control of your own condition. While a doctor can help, as you know, it’s not like you can take a pill and be cured. There’s a lot to observe (and write down!) and figure out for yourself, such as, can he eat a certain food only once or twice a week and tolerate it fine at that level?
I applaud your efforts and encourage you to persevere – I’m with you that it IS worth the risk for him to be able to eat as “normally” as possible. My son DID eventually outgrow his food allergies; but now my college-age daughter has developed them, so I’m reminding myself of those old lessons!